The patient videoscopes feature stories from real patients who survived invasive fungal infections. These survivor stories address patient and caregiver perspectives on unmet educational needs while also documenting the actual patient experience.
Faces of Fungal Infection Interviews
In the Faces of Fungal Infections series, Mycoses Study Group Education & Research Consortium (MSGERC) members interview patients who have survived invasive fungal infections. This series was created for to educate both patients and providers, raising awareness of these infections, promoting prompt diagnosis, illustrating the impact on patients, and encouraging strategies to support patients in their health journey during and after these devastating infections.
These first video interviews were conducted by Peter Pappas, MD, William E. Dismukes Professor of Medicine at the University of Alabama. They Illustrate the stories of two patients with endemic mycoses. Endemic mycoses cases have been identified in patients with COVID-19, so its helpful to understand how these infections present and what to look for in patients with or recovering from COVID-19.
Histoplasmosis: An Unexpected Finding, A Challenging Journey
Carrea ‘s Story
Carrea was diagnosed with ulcerative colitis at the age of 14 and has been on a biologic for 13 years. Recently, she struggled with an unexplained illness for over a month before things took a sudden turn for the worse:
“I woke up one Sunday morning with a fever of 104.1°F. I couldn’t really move, and I felt like it was a chore to even just lift my arm. I had a very bad migraine, and I knew something was wrong. I drove to the emergency room, and they sent me right back because my fever was so high. And they ran test after test after test. And everything came back negative. They did not know what was wrong at the time.”
Watch Carrea’s interview with Dr Pappas and learn about her experience with disseminated histoplasmosis. Witness the inspiring story of how this experience led to her commitment to advocate for other patients with compromised immune systems.
Blastomycoses: The Power of Multidisciplinary Care
While working on his truck in rural Alabama, Darrell injured himself. He then noticed a small ulcer on his forearm that was very painful. He had it checked by a doctor and was put on antibiotics. The ulcer then proceeded to grow at an alarming rate over the next 6 months. Nobody could figure out what it was. Darrell shared the strange and frustrating experience with this unexplained ulcer:
“After the first biopsy, it was twice the size that is was originally. Each time a biopsy was done, it became larger. By the next biopsy, it was probably about one third of my forearm. It was starting to bleed every night in the shower, to the point where it scared me a little bit. The doctors would say they hadn’t seen anything like it and didn’t know what it was.”
Watch Dr Pappas interview Darrell about his experience with blastomycosis.